Friday 5 August 2011

I know i know

Yes i said i would update this frequently but i have had a lot going on and i need to try harder to blog!
I want to make this blog about my mini man Jack.....

So the moment my mini man was born he has has a touch trot and it seems to never end but through everything i have never know a kid to be so bubbly and happy despite everything! As much as i have my very bad downs with him i am so proud of who he is becoming.
When i was in labour with jack he got stuck cause he was facing the wrong way (of course he was being difficult!!) I was told that he wouldn't be cry when he came out and not to freak out. He finally was born and they got him crying but he had one hell of a egg on his head from the vac and forceps and cause of the not breathing it was to the nic unit where he stayed for 4 days. While there he wasn't eating properly so he had a tube shoved down this throat,then he had an infection which made his temp spike and he had some many needles and cannulas it was hard to watch and also one of his testicles didn't come down.... So after we left the hospital we had to go back for ultra sounds on his head and testicles and to see a pediatrician for the first year of his life. His head was fine and his testicle dropped so that both turned out good!!!. He was also born cross-eyed so at 6 months old he had to see an eye specialist and he needed to start wearing glasses... well that was definitely a sight to see my mini man wearing glasses so young until then i didn't even know they made glasses so small!! This was also around the time me and Grant split but he was so little he didn't know what was going on (thank goodness for that). I was also being told from about this stage that he was under weight and was made to feel like the worst mother cause he wasn't putting on weight and he was eating anything and everything!!! This went on for about 8-10 months seeing a dr and pediatrician about his weight and general check ups! Eye specialist was every 6 months and always the case of no improvement :( we always got through specially with the help of my friends and family and my beautiful sister who we were living with!! After Jack's 1st birthday Grant was in and out of his life in it for about 3 months then gone for 6 and that went on till he was about 3 and then i kinda said enough is enough it was really getting to him and stuffing his emotions around!! Potty training happened rather late but once he got it he got it!!
Ever since Jack started playing he always had to have things a certain way and and colours had to be grouped together and he became quite attached to his care bear Grumpy he always had to come everywhere with us. Things were ok for a while just the eyes and the having to have things a certain way. He then started at childcare and he was playing up and yelling at the teachers and kids for doing things the wrong way... was a big adjustment for both of us,things calmed down after almost a year but there were still little things happening. He got assessed by someone at Lapstone child care but it didn't really tell us too much.All i really knew is we needed to get him to an Occupational Therapist.Which when i rang it was a 8 months wait.... well we ended up waiting a lot longer then that. The wait was so long because he wasn't classed at important cause of his age which don't get me wrong the youngins need help i totally understand but how is a kid about to start school not as important!!! Seriously tell em that!!!!Oh and also it was implied i take him to see a  pediatrician, so i went to my gp and got a referral to a "great" one...... She wasn't as great as they say! I didn't think she was good at all. I think she focused to much on me and Grant when Jack was the one we needed to sort out.Plus didn't want to see him for another 6 months when nothing was established in the first meeting it made me so angry!!!
The biggest problems for Jack and for me have been since he started school. I knew it wouldn't be easy with him starting but i had no idea what we were in for!! Me and this teachers just thought it was him adjusting to school and all the rules that needed to be followed. But as time went on things just didn't get better if anything things for worse. His fine motor skills still didn't develop and his behavior just didn't get better. He then got assessed by the school counselor which was he needed to see a pediatrician but i had been talking to one of Jacks teachers about clinical psychologist. So we decided he would see one instead also needed to get him to the OT as soon as possible(which still didn't happen after many phone calls) also needed to get his glasses fixed and his hearing tested(which i have been really slack with getting it done but i will VERY soon). Jacks behaviour did improve from time to time but it got really bad again after one of his Kindy teachers had to leave! Plus i was pregnant with Lilly so it was a little tough trying to spend time with him as much when feeling like crap but i made sure we spent time together!!! Also jack barely made friends in Kindy he would hang out with different groups of boys but never really fit in anywhere. Although i must add when Jack first started Kindy his first friend Was Emily and they were so cute together!!! She was always to lovely to Jack and i am thankful for that!
Jack finally got into see the OT I think it was middle of last year... i know i should know for sure but i am pretty sure it was then. So after just one visit with her i learnt a hell of a lot about my mini man. Whey it was so hard for him to write and cut and just general hand things and also why he is so clumsy and why sports just didn't happen with him. So Jack has something called Hyper mobility and low tow! The hyper mobility is like double jointedness which means all his joints bend back way more then they should and it isn't just the elbows and knees and it all the joints in his fingers,wrists.. the list just goes on and on. So this means after Jack does something for a little while his muscles fatigue because they are working so much harder then the average persons which explains why he can never sit still and finds it hard to concentrate on well anything... the best way to help is to get him to stop what he is doing and get him to do the opposite. So say he is sitting writing, to help him get back to focusing get him up send him for a walk and hen sit back down and his body and muscles are reset. In some cases it will improve with age but by the looks of it atm in Jacks case it will stay the same which more poor mini man :( but i am hopefully that it will lessen the older he gets but when if it does he can never get big or he will be in pain cause it put so much pressure on his joints and will cause a hell of a lot of pain. He will probably be a fitness freak which nothing wrong with but cant see him like that... i just know he is gunna cost a lot for either gym equipment or gym fees for him once he gets older! Now as for the low tow this is pretty much put down to co-ordination which he just doesn't have and never has!! He cant throw a ball properly or kick a ball properly. All that stuff is really hard for him and i know it gets to him when he sees the other boys playing sports... not sure what will happen down the track with the low tow i really need to research it more. Between the hyper mobility and the low tow plus a million other things i have researched over the year once i become a teacher i will be all knowledged up if any kids have any problems LOL.
Jack started seeing a clinical psychologist last year she was wonderful she spoke really well with Jack and as much as he was naughty with our visits to her she dealt with him really well but unfortunately she got offered a full time position at another practice and she wasn't allowed to take patients with her... we were so close to getting him assessed but yet soooooo far away!!! That was a huge blow for both of us i finally thought we were going to get somewhere!
Year 1 for jack was even more of a battle with Jack even to the point he got suspended for 3 days because his behaviour,attitude and was getting a tad violent. After that thought he started to get better at school and trying harder but he didn't have any friends and i still to this day believe he was being bullied buy a few of the boys in his class! I was quite happy to see the back of year one to be honest! Was a very tough year on all of us. Thankfully Jack loved his baby sister so that was an easy adjustment much easier then i expected.
This year i was disappointed to find out Jack had split teacher yet again! Don't get me wrong i LOVE jack's main teacher she is wonderful she deals really well with Jack and is just all round awesome. His other teacher not so happy about, Fair enough she knew Jack form year one when she was a substitute but once i meet her i wasn't so thrilled. She doesn't deal quite as well with Jack she will scream at him and argue with him and he is to the point it just doesn't effect him anymore. To add to it she is pregnant.. Congrats to her but she has an even shorted fuse with Jack and half the time she either doesn't show up to school or she sends him to another teacher for most of the day which isn't really a good thing. I get being pregnant is hard but you are a teacher you need to try and deal or stop teaching!!!! I know you probably all think i sound like a huge bitch but when she isn't doing best by my son i get this shits!!! I really hope that things get better i am hanging in there the best i can!!!
Jack is still seeing the OT every 4-5 weeks and she says he is improving but not to the point he can write all that well and if it doesn't change soon it never well and i am so sacred it wont . I am going to try doing SOOOOO much more at home and try and get these fine motor skill muscles moving and pray it starts to help. I must say his OT is wonderful he actually really loves going to see her cause it is fun as he says lol.
The coming Tuesday we are seeing a new pediatrician... i got his number from my ex brother in law and apparently he is really good, i am going in there guns a blazing and tell him what i need from him and where i want all of this too go. no more sitting back letting them call the shots... I am taking this into my own hands and making life easier for my mini man cause i am sick to death of life never giving him a break! I have a few ideas as to what is going on with Jack but i want to someone to tell me whether i am right or wrong but i guess time will tell. I just know i want to know exactly so we can start changing life to make it better for him and try show him that life isn't always so bad. Not that he thinks that often he is quite positive.
I think one of th biggest hurdles for us atm is trying t get his name changed as time goes on he is dealing less and less with having his name Beecham at school he has a REAL problem with it now!! But i am trying to come up with money to pay for a lawyer but worst thing is i cant be promised a win which is like a slap in the face after everything.I have also been thinking why not just go for full custody as well while i am at it. He wants nothing to do with him so  i may as well take that. Just making me so angry that he hasn't payed child support for almost a year and he wont sign these papers when he hasn't seen Jack for almost 5 years i mean come on man just sign the papers and let your "son" be happy with who he is!!! I actually think once Jack is legally Halley he will feel better about himself and that may help things with him! Hopefully by the end of the year it will all be sorted.
There is so much more about jack but this is long enough as it is i may to a part 2 down the track!!!!
I love my mini man and wouldn't change him for anything or give him up even on the bad days!!! He is my world and the one male that is constant in my life. :D
That is it for now... xoxo

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